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Archive for the ‘spiritual’ Category

Are you afraid you won’t be there when your loved one passes away?
Take a moment and be with them now. Close your eyes and talk to them.

A friend called me tonight. She was upset.

Her grandmother had a heart attack–and it doesn’t look good.

She’s afraid she won’t get there in time.

The holidays are a tough time to add grief and worry to the mix.

Not that there’s a good time for a loved  one to die, but it just doesn’t seem right when it’s the holidays.

This is supposed to be a happy time, right? A time for family.

If only disease and death were that courteous–to give us a few days a year of peace.

But unfortunately, it may come at a time when everything in you says, “no, no, no.”

I had a talk with my dad in the middle of the night. I had dreamed about him. I don’t even remember now what the dream was about.

He was having yet another heart surgery–and I woke up–the dream had been so vivid. So, I got up, and he and I had a talk.

Daddy didn’t die for another eight months, but this experience was so real, and ever since, I’ve been so grateful for that quiet time with just the two of us.

 

I listened and suggested that my friend take a few minutes alone and talk to her grandmother.

You can’t always control timing. You can’t always travel–so don’t wait to have that heart-to-heart talk.

Time, distance, disease, loss of memory, and even pain…our prayers, thoughts, and love can transcend all these barriers.

Don’t wait until you get there–planes and cars take time–the power of love is instantaneous.

 

If you’re in this situation, I hope you’ll take a few moments.

Tell them you love them.

Tell them it’s okay to let go now..

Tell them you’ll be okay.

If you need to, ask forgiveness–and accept forgiveness.

Thank them for who they are to you, what they mean to you.

Accept this experience into your heart. This is just as real as if you were to physically be in their presence.

Be at peace.

If your loved one passes away before you arrive, then you’ll have already said what you needed to say.

~Carol O’Dell

Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir

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Do you feel this is the last Christmas with your spouse or parent?

Perhaps you’re looking at a  cancer diagnosis, or you’re at the end stages of Alzheimer’s or heart disease.

This can put a cloud over the festivities. Everything drips with meaning. You’re standing in Wal Mart and feel weepy.

Or…you can’t seem to wedge your butt off the couch. Flipping channels has somehow become  your life.

 

You don’t know it, but this is the face of grief.

We start grieving long before death enters the picture.

The word grief means Deep mental anguish, as that arising from bereavement.

 

So what do you do if you feel like this is your last Christmas together?
Do exactly what you feel like doing. Trust your gut, your heart, your intuition, your spirit…whatever you want to call it.
If you need to flip channels, then give in and flip. Are you missing something significant?
Could you really grasp “significant” right now? Even if it hit you on the side of the head?
I really do believe that after about 3 days, either you’d get sick of the same old “As Seen on TV” merchandise–or, you’d get carpel tunnel and you’d have to quit anyway. Be willing to give in and see where it takes you. I’ve learned that the best way to get over something  is sometimes to give in.
Even scientists have observed  this–they find that if a child is exposed to copious amounts of pizza, chips, cookies, and apples–they’ll eventually get the junk food crave out of their system and willingly choose the apple.
Grief isn’t something you can fight. Nor should you.
It’s natural, and for the most part, healthy.
But if you can, try not to jump time–don’t go to the future–to the time your loved one dies. Be present. That season isn’t here yet.
Also realize  that if you’ve been caregiving for several years, you may have hit the caregiver’swall–you may feel numb, exhausted, and zombie-llike.
Trust the process. If you go too far, you’ll know it–everyone else will know it.
If you do have the ability to rationalize and feel, then cherish this season. Don’t dread it or push it away.
Don’t make everything drip with meaning. That can get exhausting and annoying.
Your loved one won’t appreciate being inthe spotlight every second. Follow the moment.
When something touching, seweet, or poignant happens, you have a better  chance of recognizing it if you are ‘gently” alert.
If you get a few photographs or can jot down a few thoughts, then you’ll have something you can treasure for years.
If you can’t–or don’t–then let it go. I promise you, all you need is one moment–one glance, one gentle touch of the hand, one brush of the hair–somethig will rise to the top. You will have your moment. You will find the sweetness in the season. Just let it happen.
Our relationships–and the holidays–aren’t to be forced. 
Trust that this holiday will give you a gift–at the most unexpected turn.
~Carol O’Dell, and hope you’ll check out my book, Mothering Mother

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People are about as happy as they make up their minds to be. ~Abraham Lincoln

I find it pretty amazing that this quote is attributed to Abraham Lincoln.

He didn’t exactly have a cushy life.

His mother died when he was nine, and although his family could barely survive, young Lincoln gave up hunting after watching a turkey suffer after he shot the bird(the bird thing is a side note, but I found it interesting).

He didn’t just become president over night–he was a lawyer, then tried for congress (twice) but was defeated by Stephen Douglas–over the issue of abolition.

He married Mary Todd, and three of their four children would die before adulthood. This left Mary, who already suffered with depression, even more mentally unstable. As Abraham Lincoln’s life began to evolve more and more around politics, his marriage suffered.

President Lincoln was under great stress to try to hold our country together in perhaps its most challenging time. He did so, but with great personal sacrifice. He was assasinated when he as only 56 years old.

According to today’s standards of what qualifies as a “good life,” Abraham Lincoln’s journey would not be considered an easy one–then or now.

(Other great quotes by Lincoln )

And yet, we all owe him a great debt. He held America together and changed the course of  history. His words and example still inspire us today.

He doesn’t exactly seem like a person who would focus much on the meaning of happiness–but who better than someone who knew, but did not give into sadness/

Happiness is a lot about choice. It’s a state of mind and way of looking at things. It doesn’t change the facts. If your mom has Alzheimer’s, if your dad fell and broke his hip, that’s a fact–but how you deal with it–that’s up to you.

There were many times in Mr. Lincoln’s  life when I’m sure he had to choose to simply go on, breathe in and out, and keep on doing the task at hand.  Sometimes happy isn’t about being happy, but choosing not to be unhappy (aka miserable).  Caregivers know this well.

According to the Princeton online dictionary, happiness  means:

  • state of well-being characterized by emotions ranging from contentment to intense joy
  • emotions experienced when in a state of well-being

Where did the word  “happy” come from?

It dates back to 1340, from the waord, “hap,” which was connected to chance or fortune.

(From  Etymology.com)
1340, “lucky,” from hap “chance, fortune” (see haphazard), sense of “very glad” first recorded c.1390. Ousted O.E. eadig (from ead “wealth, riches”) and gesælig, which has become silly. O.E. bliðe “happy” survives as blithe. From Gk. to Ir., a great majority of the European words for “happy” at first meant “lucky.” An exception is Welsh, where the word used first meant “wise.” Used in World War II and after as a suffix (e.g. bomb-happy, flak-happy) expressing “dazed or frazzled from stress.” Happiness is first recorded 1530. Happy hour“early evening period of discount drinks and free hors-d’oeuvres at a bar” is first recorded 1961. Happy-go-lucky is from 1672. Happy as a clam (1636) was originally happy as a clam in the mud at high tide, when it can’t be dug up and eaten.

How does it relate to caregiving?

Much of caregiving doesn’t fall under the category of “happy.” While parts might be necessary, needed, serve a purpose, and at times, appreciated–as a caregiver  I found that I had to fight or choose to be happy. Let me tell you, I know how it feels to push that rock up hill. There were some days when a Volkswagen Bug full of 50 clowns wouldn’t have gotten my mother to crack a smile! Caregiving taught me how little I could control, and writing Mothering Mother helped me to reflect on my journey.

I had to look for the good, the funny, the crazy and ironic. I had to let go, give up, give in, and simply trust. So much was so way beyond anything I could have prepared for that it was in away, left up to luck, to chance–to hope. And maybe that’s where the happy part comes in. When you can’t control it, you might as well choose to see the good, any good that comes your way.

The smallest of good/happy moments could make my day–a cardinal dipping past my window–I love how they fly–dip, dip, dip–their bright wings in defiance of a winter morning.

Bottom line, if Abe Lincoln can choose to be happy, then so can I.

Happy for no reason. Let luck and chance blow in like a surprising summer rain. Trust that it’s all meant for the good.

Right now, with all the economic challenges we face individually and collectively, I feel like I don’t have a choice–either crawl in the bed and pull up the covers (indefinitely), or keep an eye out for bright red birds and all the amazing small wonders that surround us.

Carol D. O’Dell

Author of Mothering Mother, available on Kindle

Family Advisor at Caring.com

www.caroldodell.com

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Alzheimer’s is a tough diagnosis.

Many people hear the word and instantly get an image of their loved one completely uncontrollable–who no longer knows who they are.

It’s worse than any horror movie.

Recently, at a caregiver’s conference I started my talk about my caregiving journey–and that my mom had Alzheimer’s. A woman jumped up out of her seat, let out a cry, and ran out of the room. The director followed her out the door.

Later, the director shared that the woman’s mom had been diagnosed with Alzheimer’s, and this was the first event she had attended. This was the first time she was admitting to herself that her mother had Alzheimer’s.

Why is it so scary?

Because Alzheimer’s, like cancer has a ripple effect.

We’re afraid of what the end will be like.

We’re afraid our loved ones will suffer. We’re afraid of how bad it’ll get.

We’re afraid it might be in our genes, too.

Afraid, afraid, afraid.

People are afraid they’ll get Alzheimer’s, and then if they do get it, they’re afraid of what the end will be like. That’s a lot of fear. I don’t know about you, but if I’m going to be mauled to death by a bear, then bring it on–cause worrying about it for two decades will kill me with an ulcer before I ever see a bear!

Getting that dreaded diagnosis means your life as you know it is over.

Really?

Is it all or nothing?

Does your brain, your personality, your purpose and dreams all fall out of your head the second the doctor utters this terrible word?

NO.

You (or your loved one) have probably been living with Alzheimer’s/dementia for awhile.

Life’s been pretty good, right? Sure–some slippage–some “what’s that called, what’s his name”  moments–but hasn’t there also been some quality of life?  

Does it mean as a caregiver that you will never see your friends, go on vacation, or make love–ever again?

No, it doesn’t!

Yes, it’s scary to say the word.

It’s scary to know that “it’s” in there. Lurking.

But you do have time.

You do still have a life and people you love. Nothing has really changed since yesterday.

I’m not saying it’s a picnic, my mother had Alzheimer’s and lived with us the last almost three years of her life, so I’ve seen this disease up close. But now that there’s such an awareness of Alzheimer’s, there’s earlier diagnosis–which means people are getting treated earlier.

Drugs such as Aricept, Exelon, Cognex, and Razadyne work well on many people who are in the early stages of Alzheimer’s. You can take your meds, and still enjoy so much of life.

What can you do if you or your loved has Alzheimer’s?

(It depends on age, stage, and other existing illnesses)

Get up tomorrow morning and have the same breakfast you had today.

Watch The Price is Right or go to the store. Keep on living your life.

Yes, you can take a trip. Go to Greece. Go to Rome. Do those things you’ve always dreamed of–but also know that your ordinary every day life has value.

Don’t feel lke you can’t go with a friend, your spouse and take a tour. You can. Take your meds, don’t over do it, but go!  So what if you forget the busboy’s name on the cruise ship. So what if you and your wife walk everywhere together hand in hand.

Just remember that having coffee on your back porch while reading the morning paper is pretty darn great too.

Get together with friends. Talk about your diasnosis. Get it on out there. Let them ask questions.

Let’s educate our loved ones. Let’s get over the stigma. Let’s show them that life indeed does go on. Enjoy dinner, enjoy eating out–crack a joke and watch everybody bristle as to whether to laugh or not.

Go for a walk. Your legs aren’t broke, you know. You don’t have to become a couch potato. If your finger can flip channels, it can surf the ‘net. Raise money for Alzheimer’s research or blog and share your journey with others. That’s what Terry Prachett is doing. He’s a well-known writer who has Alzheimer’s and he’s donating monies and bring awareness to this disease. You might as well use it to do some good in the world.

There are no guarantees for anyone–so why not have the best Christmas ever? Get that toy train you’ve always wanted. Take that family portrait with the kids, grand kids and great grand kids. Wear a Santa suit and pass out presents.

This is the time to video or audio record your life, your memories, your songs and stories.

Life is precious. Memories are to be passed on and held dear. So find the time when you are rested and clear headed to go ahead and yack and yack and tell all the stories you can think of–about you, your career, your adventures, your sorrows and your victories.

What if you’re forgetting more than you’re remembering these days?

Then spend this tender time with those you love. Tell them you love them–now.

Ask them to remember for you. Create a system of post-it notes, alarm clocks, and every memory helper gadget you can find. But more importantly, sit with your sweety, play with your dog–and just be present.

What if the diagnosis of Alzheimer’s comes after there’s much memory loss?

Then know as a caregiver that while your loved one may at times feel agitated and scared–Alzheimer’s is not physically painful. There is some pain at the end of life (but that’s related to the shutting down or bodily systems). The hardest part regarding pain is that late stage Alzheimer’s patients can suffer pain from another ailment and not be able to communicate it (such as a bladder infection, toothache, heart condition, etc).

Yes, Alzheimer’s is confusing (and that falls under emotional pain), I”m not belittling the ramifications of this disease and its impact on families in any way.

What can I do as a caregiver/loved one to help?

  • Be patient
  • Don’t get overly emotional–that’s scares them
  • Stay in charge–that makes them feel safe
  • Keep them safe
  • Take care of yourself, pace yourself–this could be along haul
  • Let them talk about deceased loved ones/careers/the war–and enjoy listening
  • Don’t get caught up in the million question game
  • Don’t take their outbursts seriously
  • Do what’s right and don’t let them manipulate you
  • Provide what they like as much as possible (likes will eventually fade)-food, music, art, sports
  • Introduce yourself and who you are–daughter, nurse, etc. every time you see them (If they’re forgetting who people are)
  • Don’t be offended when they forget who you are to them–even if you’re their wife of 50 years
  • Don’t take it personal if another person, animal, or inanimate object seems to make them happier than you do–it’s just this wacky disease
  • Know that they love you even when they can’t verbalize it
  • Remember for them. Write their stories, sing their songs, play the music they loved when they were dating
  • Keep a watchful eye on them in the hospital and care facilities–no one will pay attention and catch mistakes more than a loved one
  • When the end comes, give them your verbal permission to let go
  • Stay up beat. They need you more than ever

Don’t get me wrong–I’m all for falling apart, so you’ll need to fall apart every now and then.

But fall apart in the closet, in the shower, in the car. Scream, cry, beat the steering wheel. This is a mean son of…, and you have every right to be angry at this disease. That’s important.

Then go on. Occupy your thoughts with a song, a new recipe, the color you’ll paint your bedroom next month. Don’t abandon your marriage or your kids or all your hobbies. You need a life (however small it may seem to shrink).

Don’t dwell on this disease–that’s giving it way too much power.

It is what it is.

Eventually, you’ll reconcile yourself to Alzheimer’s. You will if it hangs around enough to absolutely wear you out. Reconciliation isn’t the same as giving up. It’s about allowing.

You can fight it–beat your chest and beg–but it won’t let go.

So laugh at the crazies, hug and hold hands as much as you can. Scream and cry when you need to.

Create your own village of support, and be “okay.”

I don’t know where you are–if your loved one just got the news and you’re still reeling.

Or maybe you’re in your tenth year and your mom’s in a care facility and she has absolutely no connection to reality.

No matter which case, you can’t get to any level of peace without going through the fire.

You will find your way. You will have a good moment, an allowing moment here and there–when life and your loved one–and all that you’re going through is ironically, “okay.”

Oh, and about the gal who ran out of the conference crying?

I met her–and her mom walking through the mall last Christmas. She introduced me to her mom–with tenderness and pride.

I’m Carol O’Dell, and I wrote Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir. It’s available on Amazon and in bookstores.

I hope you’ve enjoyed this blog and will visit again.

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Today, the Today Show had a six-year old little girl on their show who is a singing sensation. She can belt out the national anthem with a voice to rival Ethyl Merman. Natalie Morales introduced her and said that the little girl also lives with autism.

Words are important. Autism cannot be viewed as a death sentence–especially not for a child who has their whole life ahead.

Living with or suffering with makes a big difference.

If you have Parkinson’s, Alzheimer’s, MS, or cancer, you have to eventually come to choice–do you choose to live or suffer?

Personally, I hope to never say the word, “suffer” again. I don’t want to suffer with anything!

Suffering implies pain, sorrow, heavy burden…agony. And yes, there are moments, days, even months where pain and sorrow overwhelms life–but as my very religious, very southern mother used to say when asked how she was, she’d reply…

“Well…I don’t want the devil to hear me!”

She didn’t want to entomb herself in negativity.

Caregivers, how do you talk about your role? Begin to observe your words.

How do you introduce yourself?

“I’m just a caregiver?”

“I’m just caring for my mom?”

Really? Just a caregiver? That’s like saying you’re just the president of the United Stats, just a mom, just a CIA assasin!

Even if you are at home with your loved one, or even living with them. You can introduce yourself any way you like–”I’m an artist, I’m a teacher (even if you’re not in a classroom now, do you ever stop teaching? I’m in school (are you taking an online class? That counts.”

If you introduce yourself as a caregiver, then do it with pride.

But also introduce the fact that you’re a daughter, a wife, a friend. Your role as a caregiver is admirable, but your loved one needs to hear you say that you’ll always be their daughter/sister/spouse first.

How will anyone respect you and perceive what you do as important if you don’t?

Choose. Choose your words. Choose to care for your loved one.

No one is making you be a caregiver. You may think they are. You may believe that you have to, that your loved one has no one else, that it’s your responsibility…but realize that it is a choice. Other people in your same situation have said no. The world will not end. Is it the right thing to do? To say no? Every family is differentt, and my point is that you choose.

If you choose caregiving–part-time, full-time, in your home, their home, as a working caregiver, or an advocate for your loved one who is in a care facility–whatever the living/working arrangment is–choose. Caregiving is a part of who you are, it’s a role, what you do with your time and energy.

Take the helplessness, choice-lesness out of your vocalbulary.

~I’m Carol D. O’Dell, and I hope you’ll check out my book, Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir

It’s available on Amazon, other online stores and in bookstores. Kunati Publishing

I’m a family advisor on Caring.com, and my syndicated blog appears on www.opentohope.com.

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Creating a bedtime ritual is good for the body and soul.

Parents do this for their children–read them a book, sing a song, say a prayer. Why do we ever stop?

Everything from brushing your teeth to the way you fluff your pillow gives cues to your body to begin to relax and let go. It’s a great way to ward off insomnia and over-thinking/worrying.

 

I always ask myself two questions at the end of each day:

What was the best part of my day?

What am I looking forward to tomorrow?

As I ask myself the first question, I almost always get a visual, and about 85% of the time the best part of my day had something to do with nature. Not about me achieving my goals–and believe me, I’m very goal driven. It’s not about a royalty check reflecting how many books I’ve sold or some other personal achievement (sometimes it is, but it has to be something I feel I’ve earned or dreamed about for a long time).

The first question allows me reflect upon the day.

It’s about the double-winged dragonfly that zipped past me while I was biking. Or the blue heron that stood still and let me get really close. Or the field of wild rabbits I came up on. No matter where you live–New York City or Kalamazoo, there’s more nature around you than you think. It’s there for a reason–it sustains you in so many ways.

 

Nature gets me outside myself. It connects me with all living things. It’s exquisite,  exotic, powerful, and surprising. Sometimes I relive these moments–the feel of my hair lifting off my shoulders as I bike, the buoyancy of the waves as I body surf–reliving those moments at the end of my day is living life twice.

Occasionally, it’s about an old friend that called, a recognition I’m particularly honored to receive, but more times than not–it’s not about me.

This one question has also changed my day. What will I have to tell myself at the end of the day if I don’t get outside and give opportunity for those “best parts of my day” to present themselves?

It’s heightened my awareness. I step out my front door expecting a miracle, or at the very least, a gift.  When that hummingbird appears, that deer looks me in the eye, I’m acutely aware–and grateful. I tuck in my memory like a pebble in my pocket knowing I’ll get to enjoy it again as I lay my head on my pillow.

The second question links me to the new day in front of me.

This one I heard from Dr. Phil.Now I’m not crazy about the direction he’s taken with his Jerry Springer-esque tv show, but I heard that he asks his sons this question each night so that they would end the day on a note of hope.

No matter our age or circumstance of life–we all need something to look forward to tomorrow.

Whether it’s meeting a friend for lunch or the next day’s walk, we need to go to sleep with the thought that tomorrow is waiting for us.

It doesn’t have to be big. It doesn’t have to cost money. It’s about creating a life of meaning.

Even our elders those we are caregiving need to look forward to the next day.

This again, causes us to create our days, make plans, and focus.

Create a morning ritual as well. 

List 5 things you’re grateful for before you get up.

Again, we’re talking simple.

Here’s today’s morning list for me:

I’m grateful for–

  • a bike ride (I go on one every morning)
  • my dog Rupert and his he sits nudged under my desk as I write
  • cherries that are in season–and the bowl that awaits me when I get up
  • my favorite pillow–gushy
  • my newly painted office that is lipstick red with white trim–and has a whole wall painted in chalkboard paint so I can literally write on the walls

Nothing earth shattering, but as my feet hit the ground each morning, I do what was suggested in the book, The Secret. Each step I take on my way to the bathroom–I say, “thank you, thank you, thank you, thank you.” Out loud. I

‘m smiling by the time I glance into the mirror.

This sure is better than beating myself up for saying something stupid that day, or mulling over a pile of bills, or rehasing a disagreement. There is a time to deal with those things, but that time isn’t the last thing at night or the first thing in the morning.

Protect this sacred time. Gather the best, look forward to tomorrow–

and fill your heart with gratitude.

 

I’m Carol O’Dell, and this is my blog, Mothering Mother and More, found at caroldodell.wordpress.com/

Carol is the author of Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir.

It’s a collection of stories and thoughts for families and caregivers written in real time as she cared for her mother who suffered with Alzheimer’ and Parkinson’s.

Mothering Mother is available at Amazon and can be requested at any bookstore or library.

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Randy Pausch died last Friday.

He’s the Carnegie Mellon professor who wrote The Last Lecture.

The book is based off a lecture he gave to his students that received such worldwide attention on YouTube. If you haven’t seen it on YouTube, here’s the link:

It’s not his usual style lecture since he’s a computer geek who teaches about virtual reality.
But Randy contracted pancreatic cancer.
It changes your priorities.
Randy’s last lecture was about play, integrity, falling in love, and purpose.
Randy lost his battle with pancreatic cancer last Friday.
His wife of seven years and three young children will miss him every day.  
He was 38 before he ever found true love.
He said something I’m passing down to my unmarried daughter.
“Don’t get married until you find a guy who has come to the point that your happiness matters more than his.” 
Randy and his family was featured on ABC last night.
It was about the most inspiring thing on television I’ve seen in a long while.
Here’s the link: abcnews.go.com/GMA/story?id=3633945
The Last Lecture (book and video) was written Randy says, not for the masses, but for his children.
He left behind what is referred to as an ethical will.
What is an ethical will?
It’s usually a written document in which you pass down your ethical, spiritual and emotional values.

Here are some common themes seen in many of today’s ethical wills:

  • Important personal values and beliefs
  • Important spiritual values
  • Hopes and blessings for future generations
  • Life’s lessons
  • Love
  • Forgiving others and asking for forgiveness
One such document was written by Barry K. Baines MD. His book is titled, Putting Your Values on Paper
I can say with great pride that Dr. Baines read my book, Mothering Mother and endorsed it.
I didn’t put Randy and Dr. Baines together until just now. Not until I started writing this post.
I love the serendipitous nature of life. No wonder this story moved me so.
Randy’s book and lecture is so about living, really living.
He says it’s about achieving childhood dreams, but I think it’s about capturing the essense of those dreams and living them out every day.
It’s also about who you are and what of “you” do you choose to leave behind.
My adoptive daddy had a profound effect on my life. When he died, I remember asking God to pass down Daddy’s mantel onto me. It’s a religious term that is mentioned in the story of Elijah and Elisha.
In case you don’t know or don’t remember, Elijah was a powerful prophet in the Old Testament. Elisha wanted to be his under study. Elijah told him that the only way that would happen was for him to follow him around everywhere and the moment God took him, Elisha had to be there to catch his “mantel.”
The story goes that a fiery chariot swooped out of the heavens, grabbed Elijah, and as he was snatched away–his cloak fell to the earth and Elisha caught it. Elisha went on to be a power prophet in his own right.
Now this story sounds downright Greek (as in a good yarn of mythical proportions). 
While you may or may not choose to take it literally, it’s about the transfer of power.
It’s about appreticeship and mentoring.
This is what I wanted that I wanted Daddy to pass on to me: 
Daddy posessed quiet power. Wisdom. Strength. Love of family. Dedication.
Honor. Thoughfulness. Old Southerness. Sweetness. Easiness, but with a line of “this is as far as you go.”
No one messed with my daddy. Everyone respected and admired him. Everyone. He had real power.
The kind you earn. The kind earned by staying married, by being a sharp shooter in World War II.
By walking a quiet, good life.
Do you know what the physics equation is of power?
(I watch a lot of TLC, and Discovery Channel).
Power  = Energy Divided by Time
You want to know how to add power to your life?
Put in a chosen amount of energy over a chosen amount of time–and you’ll have the equation to get however much power you want.
Say you want a powerful body. Muscles.
Go to the gym for 45 minutes a day four days a week for six months.
You’ll have power. You’ll have muscles. That simple.
We over-think, try to take shortcuts, and really it’s mathematical. Put in the time. Put in the effort.
What’s this got to do with ethical wills?
Those powerful people in your life–whoever you respect and admire–your dad, a coach, a teacher–you recognize their power, their expertise, the way they make others feel and how they inspire them.
You want some of their power, their inspiration after they’re gone. You don’t want it disappated into the atmosphere.
Like Elisha, ask for it. Put in the time. (He put in ten years)
Maybe this is what caregiving is–putting in the time and being there to catch the mantel.
Ask your loved one to leave a piece of themselves behind.
Ask them to write it down, or video or audio record them.
Get them to tell stories. Ask them who influenced them, who inspired them.
You can download an ethical will form, or you can simply write a letter to those you love.
Caregivers, I urge you to get your loved ones to do this on one form or another. You’ll be glad to have something permanent, something you’ll always treasure.
Randy Pausch inspired a nation.
In a publishing era that seems too often to be more about marketing and hype than substance, a little book and a YouTube video comes along and knocks the world off its feet.
He talked about what matters most–in the end.
Love, family, hard work, truth, play.
His children–and his readers are blessed.

Carol D. O’Dell

Author of Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir

available on Amazon

www.mothering-mother.com

Family Advisor at www.Caring.com

Syndicated Blog at www.OpentoHope.com

Kunati Publishers, www.kunati.com/mothering-mother-memoir-by-car/ – 95k

 

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Mr. Spock said it r first. We all hope to live long and prosper.

But living long is an art–if you’re going to do it with finesse.

And prospering isn’t all about money–it’s about the wealth we acquire when we live good lives and take care of ourselves.

Great docs such as Dr. Oz and Dr. Roizen of the book, Real Age have compiled all the latest health data that if followed, can literally add years to your life. I took this info, along with several known preventative methods to deter Alzheimer’s and compiled it into a list. I love Dr. Oz’s You on a Diet, and You the Owner’s Manual–just enough medicine talk to teach me a few things in a great format I don’t mind picking up again and again.

You might want to post this on your frig.

Don’t feel pressure to do it all–just pick 2-3 things that you can incorporate into your daily/weekly life. That’s enough for now. Later, you can add 2 more.

The Health List: (Ranked in importance to some degree)

  • Embrace a positive attitude. This is number one. Squash those negative thoughts. Redirect them. How? Catch yourself in the act. Turn the negative thought into a positive one and say it out loud. Flood your car and other places where you mind wanders with music, informational CDs, or healthy conversation–continually correct those down/derogatory thoughts until they’re crowded out by good ones.
  • When you can’t, laugh it off. Sometimes life just gets chaotic and absurd. When the crap just seems to pile up, then laugh about it. Ask yourself if this will matter one year, five years from now. Most of the time, it won’t. If it will, then take action and do what you can to fix it–if not–let go of life’s steering wheel and enjoy the ride.
  • Let go of hurts and resentments–most people don’t mean to hurt you, and for those who do, why give them power by dwelling on it?
  • Breathe! When stressed, stop, place your hand on the place on your body where you’re feeling the most tension–head, stomach, and take five slow deep breaths. Count if you need to, if your mind needs something to focus on–30 counts in, 30 counts out–breath in through your nose and really fill up those lungs, and breath out through your mouth and empty everything out in that breath. Do this at least three times a day–stress or not–it’ll change your life. It’s great for stress and anxiety.
  • While we’re on breath, you gotta give up smoking. If you haven’t so far, make an appointment and get into a doctor quick–there’s so many ways they can help you–meds, hypnotism–you’ve simply got to quit. Know that each time you try, you get closer. So don’t give up. I have lots of relatives who tried for years, and you know what? None of them smoke now. Many smoked for 20, 30 years–and now they’re clean. So it can be done!
  • Get enough sleep. I’m talking 8-10 hours. Sleep deprivation will take years off your life,damage your body, and make life miserable. Create a sanctuary in your bedroom–declutter, paint it in a soothing color, get great sheets–look forward to going to bed. Not sleeping enough is responsible for more car accidents than drunk driving and is directly linked to obesity.
  • When you can, nap for 20 minutes. It’s restorative and will aid in your mental sharpness and creativity.
  • Surround yourself with people you love–a spouse, friends, build relationships and community in which to be a part of.
  • Walk 30 minutes a day. Don’t stop. Keep a steady pace. Music helps. It aids in weight loss, stress, diabetes and heart disease prevention.
  • Music is a great mood enhancer. When you’re down, reach for the ipod instead of the pills/booze. It’s known to be effective in dealing with anxiety, depression, and lowers blood pressure.
  • Make love! With yourself and others–being sexual is good for you. (If it’s in a monogamous committed relationship). Create an environment where sex, cuddling and fooling around is easy and relaxing. If not, explore why you’ve shut down in this area–stress? Lack of sleep? Unresolved issues? Take a look.
  • Do some weight bearing exercise 2-3 times a week. Lift weights, work in the yard–move your muscles and stretch those ligaments. It’s even more important as we age.
  • Play! While exercise is important, face it, it’s boring. What sport or activity did you love as a child? I was a bicycler. Now, I bike almost every day. Swim, kayak, install a basketball goal in your driveway–even if you don’t have kids around any more.
  • Stretch–everyone can stretch–any age. 5-10 minutes a day–along with your breath work is something caregivers and their loved ones can do together. Yoga’sgreat too, and there are lots of DVDs and online classes if you can’t get out.
  • If you want to obsess about a body part, then concentrate on your waist size. Waist size reflects mid-section fat–the dangerous kind that’s close to your heart. Men should have a waist of no larger than 36 inches and women, 32 inches. So get out the tape measure and take deep breath…
  • Incorporate being active into your relationships. Meet with a friend for lunch–and then go for thirty minute walk. Sign you and your spouse up for tennis lessons or dance lessons. Shake things up. It’s easy to get sedentary in our relationships and build upon eachother’s bad habits.
  • Get out in nature. Nature’s benefits are endless. We are a part of this planet, and no matter where you live, there’s a dragonfly or cardinal waiting for you. Nature teaches us and heals us in ways we’ve yet to explore or understand. Do you know what prisoners miss the most? The sun–and being outside. Most of us can get up and go outside our front door. Do more than walk to your car.
  • Get your Vitamin D.How? By getting outside–remember I mentioned walking for 30 minutes? Do you know that your eyes and skin absorb just the right amount of Vitamin D in about 10-20 minutes and then it shuts off so you can’t overload? Vitamin D is crucial to your bones and is a real problem for the very young and the elderly–so even if you’re a caregiver–wheel your loved one outside and enjoy the flowers, dragonflies, and walk around the block.
  • Before you head out the door, slather on some sunscreen. No need to inflict damage to your skin, which isn’t pretty in the long run, or put yourself at risk for skin cancer. It’s way too easy to buy a moisturizer that has full spectrum sunblock and slather it on each day.
  • Speak up. When something is bothering you, begin to speak up. Say how you’re feeling. You can do this without blame, but stuffing your feelings is damaging and is known to cause lots of health problems. Speaking up is about taking care of yourself. It’s not always about fixing a problem, but voicing your hurts and concerns is beneficial for everyone. Risk the confrontation. Most people take it better than you think and it can be a great bridge to better communication.
  • Embrace faith. Whatever you believe, to whatever degree–embrace the sense of hope that faith embodies. It’s okay if it’s not the faith of your family or culture, it’s okay if it is–people who have some sense of life beyond, of purpose past self feel more at peace and more connected.
  • Look at your stress. Caregivers and those who are actively caring for others all hours of the day and night can really feel overwhelmed, but what is it that really gets to you? Everyone is different. Stress usually stems from a lack of control. For some, it’s the feeling of being trapped, of feeling like your life is put on hold, or maybe it’s the helplessness of seeing a loved one in pain. Is there one small thing about the stress that you could change? Ask for different pain meds? Try acupuncture? Take an online college class so that you feel like you’re doing something for you? Change doctors if yours won’t listen or communicate. One positive act can have a huge effect. You can’t fix it all, but knowing that you can do one thing can really help combat stress.
  • Learn something new. Learn a language, take a class at the rec center, learn to knit, take a computer course, do a tutorial of photo shop, learn how to make a great tiramasu–use that brain of yours!
  • Play games–in your downtime, reach for the crossword puzzle, chess set, or brain games. It beats re-runs of old tv shows and fires those neurons in your brain.
  • When is the last time you laughed? This is where friends come in handy. If you’re going to watch tv, then opt for funny because it does great things for your body and spirit. Make sure you have at least one “fun” friend who makes you laugh, and brings joy and play into your life.
  • Touch. Be affectionate. Hug, kiss, pet your dog. Touch is deeply important. It’s healing. Get a massage. Hold hands.
  • Practice smiling. If you haven’t smiled in a while, or you can’t remember if you have or haven’t, then start practicing. Smile in the car. Smile on the way to work. Smile in the shower. Smiling goes much deeper than just affecting the muscles in your face. Smiling and touching a part of your body is known as Qi Gong in Chinese medicine. It may sound silly, but you”ll feel better and sometimes we just get out of the practice.
  • Avoid the doctor! Whenever possible (not when you’re really/very sick) don’t reach for the anti-biotics. A cold will run its course. Getting in a medical mindset is unhealthy. Drug companies have corrupted American health care–and a pill isn’t always the answer. For simple things, go to the Internet, a health book and try the natural alternative. Now I’m not talking about cancer, heart attacks, etc.

THE FOOD LIST:

  • Eat well. Food is a celebration of life and culture. Eat what you love. You may think you love Fritos and Ding Dongs, but I bet you love other things too. Make your plate a work of art. Eat on a real plate, sitting down at a nice table. Eat with those you love. Surround yourself with beauty as you eat–a candle or a flower. Think about the food you’re eating. Turn off the tv and enjoy what’s going in your body.
  • Have an eating plan. If you know you’re going to be extremely busy, then take a sec and plan what you’re going to eat. There are almost always decent alternatives. You can eat decently from a quick stop, so no excuses. Stress eating leads to junk food eating. Create a fall-back plan for when life is crazy and incorporate at least a few healthy alternatives. Love salty? Go for salted nuts as opposed to chips. Love sweets? Go for Twizzlers or other candies with no fat–or a bag of grapes. Mindlessly eating? Grab a bag of carrots. Some gum, or popcorn. Know what it is you want–to chew, something creamy and homey–have those comfort foods on hand. They now make a Mac and Cheese with only 2% fat–and it doesn’t taste half bad. 
  • Know your weak spots. I know when I’m overworked and exhausted that I eat crappy. I’m working on a plan–foods that aren’t terrible for me, but I still find comforting in times of stress. I also know that during those mindless eating stress times I need to take a bath and put myself to bed. I’m not craving food as much as I am self-care and rest.
  • Cut way, way back on fried foods. Now I know you love them, but save them for truly special occasions–birthdays, anniversaries. If you need a fix, then consider oven frying your food at home–country fried steak, and fried chicken still taste good from the oven and it really cuts down on the fat.
  • Eat at home. It’s the only way to control your portions and calories–and quality. There are so many hidden variables in eating out it’s hard to know where to start. Make your home a place of serenity and beauty and take pride in the food you fix. It’s a much more satisfying experience. Learn to make one or two new dishes a month–and enjoy the experience.
  • Embrace fruits and veggies. You know you should–start with those you already like. If you grew up on green beans and corn, then start there and always have those on hand. Try a few more–see what you like. There’s a million ways to make a salad so get creative. The darker green the veggie, the better–the brighter the fruit, the better. Color rules!
  • Go green and buy those fruits and veggies from a local stand–you’ll not only help out your community, but you’ll get fresher produce.
  • Look at your palm. That’s the size and thickness a piece of meat needs to be. You only need one of two of these palms a day. Not enough food? Then pile on the veggies! Have a piece of fruit before your meal–or after.
  • Avoid white–white bread, white rice, have small portions of corn and potatoes. Choose grains instead–brown rice, wild rice, all different kinds of bread–seek out a local bakery. Potatoes and corn are good, but know that you don’t need a huge plateful.
  • Avoid the other white stuff–mayo, full calorie dressings, gravies–all should be used sparingly and the low-fat version is a better choice since we tend to over do it in these areas.
  • Dairy is okay for most people–especially women. Americans could eat more yogurt–the yogurt cultures contain acidophilus and is great for balancing our digestive tract.
  • Curb your appetite with a palmful of nuts. Keep lots of nuts on hand (raw is best, but just get used to eating them regularly at first). The best nuts for your brain are walnuts, almonds, and pecans. They’re great in salads too. It’s a good idea to eat a small handful before a meal–they curb your appetite, have a healthy amount of oils, and you’ll be less ravenous at your meal.
  • Know your super foods–not all food is created equal–here’s a list of the best of the best:
    • Beans
    • Blueberries
    • Broccoli
    • Oats
    • Oranges
    • Pumpkin
    • Salmon
    • Soy
    • Spinach
    • Tea (green or black)
    • Tomatoes
    • Turkey
    • Walnuts
    • Yogurt
  • Nix the plastic bottles of water and install a water filtration system on your faucet. Plastic isn’t good for you–fumes and all–and most city’s tap water is just as clean, if not cleaner than the stuff you’re paying for.
  • If you want notch it up, go for organic meats and eggs that haven’t been injected with hormones. It’s more expensive, but realize you need to eat less amounts of meat any way. We don’t need all those hormones and antibiotics.
  • Take a multi-vitamin–while research goes back and forth about supplements, if you’re eating well, you don’t need too much else. If you’;re dealing with a certain condition–UTIs, heart disease, Alzheimer’s, then this is the time to incorate a few more supplements. Some research indicates that Vitamin C and E helps stave off Alzheimer’s. A great source to know what to take for what disease/condition is at Dr. Weil’s site.                                       .
  • Enjoy a glass of wine! Ladies, on a day is enough. Red is better (although I’m a Riesling fan). Beer’s okay too.
  • Give up the Cokes/carbonated drinks. Nothing good is in any of them. Treat yourself to one occasionally–if you really like the way it tastes, but don’t keep them in your house. They actually suck oxygen out of your bones, has been linked to Parkinson’s, and new research says it might actually damage your cells. And have you seen what it does to your car battery? 
  • Have a cuppa coffee! This one made me particularly happy. Studies show that coffee’s good for your heart–and for Alzheimer’s. It opens up the blood vessels.
  • Give up the artificial sweeteners. They’re all scary. Go with steevia. I know, it’s hard for me too.
  • Go with real butter as opposed to the fake stuff–but a little dab’ll do ya.
  • Go with olive oil whenever you can. Other than desserts, you can cook with olive oil–and we already said that cakes and cookies are a splurge item.
  • Fish rules. Try to incorporate 2-3 fish dishes into your weekly diet. Salmon is great choice. So are all the white fishes–this is when white is good. Go local when you can. Broil or pan cooked fish only takes minutes to fix.
  • Desserts such as cakes should go with life’s celebrations. Enjoy them on birthdays,  anniversaries and holidays–as well as break ups and other life tragedies that only a cake can help. Other than that, have your glass of wine, dark chocolate and some cherries–not a bad way to end a day. If you love your icecream, then go with a low-fat frozen yogurt. Experiment and find your favorite kind.
  • One great dessert you can have it dark chocolate. I keep it at all times. Seriously. I have a small bar each day. I like Dove dark chocolates. I need it be a little creamy. Some of the European high cacoa varieties are too bitter to my liking. Four of their little squares makes me very, very happy. I also like Ritter–and they have one with hazelnuts that’s to die for. Dark chocolate has anti-oxidants which lowers blood pressure.
  • Incorporate flax seed or flax seed oil into your diet–a spoon of the oil can be added to soup, rice, or other dishes and isn’t even noticed. This gives the body Omega 3′s which is great for your heart and is also high in fiber.
  • Women and seniors probably need to take a calcium supplement. We just don’t get enough, and we don’t lift enough weights to offset gravity’s pull on the bones and spine.
  • Best spices are cinnamon (regulates blood levels and is good for diabetes), curry and cumin (heart and metabolic effects) and garlic (heart again). In fact, spices are great all the way around.

A Few Last Words:

Trust your body. If you’re craving lemons, then eat lots of lemons. If you’re sleeping ten hours a night, then tuck yourself in early.

Our bodies are incredibly intuitive. It knows what it needs. Also know that it’s about 3-6 months behind, so the stress you’re experiencing now (say, a bum knee or a heal spur) might be because of the stress and strain that was put on it months before–also know that your spirit works the same way.

If you’ve experienced a huge life change, then realize that your body and mind may be reacting to it months later. If you’re weepy, angry, mopey, it may be that your body needs to play catch up. Let it feel what it needs to feel and trust that it won’t last forever.

Get rid of negatives. Negative people and work situations can be difficult, if not downright impossible to overcome. If you’ve tried to remedy the situation–you’ve spoken up, offered solutions, tried to be amenable and it’s still not working–then consider a change. Money isn’t everything, and if your relationship is unhealthy, then choose to be alone and trust that if you ask the universe for something better–and then wait–it will come.

If you’re in a stressful situation–caregiving, the end of life, a messy divorce, recovering from a car accident, then be gentle on yourself. Life ebbs and flows and know that this difficult time will pass.

Sounds like a lot, huh?

Focus on one thing. If you try to be uber-good, it’ll back-fire and you’ll wind up overdosing on Ho-Ho’s in your car. One change is a good change.

If I’ve forgotten something important, then email me and I’ll add it to the list!

According to the death clock, I’m living to 100. Now, I’ve seen what 90-100 looks like for most folks, and I’m on a mission to improve my last decade. I plan on dancing at my great, great granddaughter’s wedding!

Live long–and prosper!

 Carol D. O’Dell

Family Advisor at www.Caring.com 

 

 

 

 

 

Syndicated Blog at www.OpentoHope.com

Kunati Publishers, www.kunati.com/mothering-mother-memoir-by-car/ – 95k

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Caregiving does things to you–as a caregiver, a family member.

It takes you places.

At first, you might start out caregiving heroically–feeling that you can make a difference. You can “fix” this problem–that your loved one’s condition can be bettered if you could just…get in there…find the right doctor, get on the right meds, coordinate the proper level of care…

It’s a tough day when you finally realize you can’t fix your loved one.

You can’t fix their disease.

You can do very little to make anything about this “better.”

You learn to just live, love, and hope to be granted some small level of grace.

You may feel as if you’ve lost them forever and this can cause you to grow bitter if you’re not careful. We don’t like not being in control, not getting results.

 But what if one of the goals/purpose/benefits of your loved one getting ill, facing death is what it does to you, the caregiver? What if part of this is about you?

What caregiving does to you, asks of you, unearths in you? 

I’m not trying to be Pollyanna here.

Sometimes it all feels useless. You didn’t sign up for a life lesson, and this is really shitty. Pardon my French, but I’ve been there, and I used far more “French” than that in my caregiving years! 

If someone told me that I was supposed to get something out of caregiving, there would be some days that I would have definately thrown some heavy, possibly sharp object directly at that person’s head.

But as the target talking here, I’m going to duck and say it again:

What are you supposed to get out of this experience? 

I can’t, I refuse to believe that caregiving is just this terrible, horrible thing that you have to endure because life’s just like that. Caregiving is so much more.

As much as it feels as if your loved one’s personality is gone–that you’re caring for a body, not your mom, remember they’re deep inside. When my mother started to lose her essence, I had to sort of go on auto-pilot. I had to care-give because of my commitment, my integrity (which I was groping and grasping to hold on to).

The difficulty lies in the fact of what we knew they once were–vivacious, intelligent, gifted people who made an impact on the world.

I was in a caregiver support group recently where a woman shared that her husband was a Yale Law professor, and now he can’t even dress himself. Her grief was palatable. She was holding onto who he was–what he did, what he presented to the world. She hadn’t let that part of him go yet.

Although you may only get glimpses of your loved one, hold onto the knowledge that they’re there. It becomes a treasure hunt. I began to seek out glimpses of my mother.

I started to notice smaller and smaller details: the way her hands moved, the way she’d brush her hair out of her face. That was still her. I didn’t use my hands like that–that was her own distinct way. As the bigger, more obvious ways of communicating diminished, it helped to pull in, and find my mother as if we were enjoying a game of hide and seek.

Some nugget, some kernel of their spirit is still inside.

 

Since the release of Mothering Mother, I’ve spoken to several thousand caregivers and their loved ones across the country. I’ve visited care facilities, and I’ve found that no two people are alike. No two people with Alzheimer’s react the same way. Even in their “lostness” is unique.

I knew I had to let go of who my mother was, and sadly, I knew I had turned her into a list: mother, wife, minister, cook.

I had to decide to love who my mother is: a person, a woman, the core of a spirit.  

 

I read about a couple whose son had been in a motorcycle accident years before and was brain injured. He was still alive, but he wasn’t the son they knew before the accident.

They decided to hold a memorial service or celebration service–even though he had not passed away. 

They needed to let go of the son they once had–in order to embrace their new son. This new son still needed to be loved, still needed parents, but as long as they were holding onto that old son/old image–it hurt too much.

I know that parents of children with disabilities have to mourn their pre-conceived notions of their children, of what it would mean to be a parent. They must learn to love and embrace the child in front of them–their medical/mental challenges, the way they may look, talk, or act different. They must witness and embrace the new beauty, the new relationship before them.

This journey, this revelation changes them–and in the end, oftentimes makes them a better person capable of more love and peace than could have ever imagined.

You’re not really letting go of your loved one–of who they were, who they are–you’re enfolding that into you–you’re the keeper of time, of memory, of all you hold dear.

 

 

I love time theories and quantum mechanics, (I wrote several papers on it in college) and I read a great article by a physicist that explained that time and events(or place–for us to conceive time, we have to intersect it with place) can be seen as a wheel with each moment being a spoke–and our memory adds meaning to that event–so some moments or events “spike out.”

Each moment, each event stands apart and will always exist.

For me, my mother, myself, and all the moments I hold dear exist forever.

 My favorite author, Madeleine L’Engle says,

“The great thing about growing older is that we get to keep

every age we’ve ever been.”

 Carol D. O’Dell

Family Advisor at www.Caring.com

Syndicated Blog at www.OpentoHope.com

Kunati Publishers, www.kunati.com/mothering-mother-memoir-by-car/ – 95k

 

 

 

 

 

 

 

 

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Those last few hours, days, weeks, or months are a mix or panic, sorrow, numbness, and tenderness.

It usually comes after an accident, diagnosis, or surgery–or sometimes, for our elderly, it follows a slow, painful descent.

However you got here, my heart goes out to you.

“I Don’t Know What I Should be Doing Right Now.”

This is normal. You feel lost, kicked in the gut–you have little or no experience at this.

I know your world feels as if it’s falling apart. You might feel the need to control everything, or you may feel that nothing is important. You may be going a mile a minute, making phone calls, demanding to see doctors, exploring treatment options–or you may be paralyzed and all you can do is sit next to your loved one and try not to cry.

Either way is fine. Your’re on auto-pilot. This is fight or flight. You wish you could just go back to life as before, but you can’t. You wish you could be a caregiver–as hard as it is, it sure beats feeling helpless.

Let others step in–or tell them everyone that everything can wait. Do what’s natural.

The Bare Essentials–A Few Important Things to Remember:

  • Get a piece of paper and pen–write down anything the doctors or nurses tell you–you’ll be glad you did when someone asks you something and you have a complete mind meltdown
  • Keep track of your loved one’s meds and treatment times–realize the care staff isn’t going to deliver the meds on the dot, but you have the right to ask–especially with pain meds (which can be done with IV) your loved one should be kept comfortable–and you can insist on this
  • Designate a liason–a family member or friend who can field calls and coordinate plans–they’ll feel useful and you won’t feel overwhelmed
  • Pace yourself. If you’re in a hospital or hospice or at home, know that you have to keep some strength and clarity in reserve–in case you need it
  • Get your sleep–and get a bit of fresh air–you may be called on to make a very important decision–do you really want to do that on no sleep?
  • If your loved one can talk, initiate a conversation about end of life care–feeding tubes, Do Not Resuscitate orders–if you have a living will, then you have it in writing–if you don’t, then as hard as this is, ask the nurse’s desk for one (the staff can get you one). It could save you so much heartache later
  • If you do have a living will, bring it to the hospital or care center. Even if the facility has one, you need the other copy with you. Trust me, these things can slip through the cracks
  • Be the family you are. Don’t let others judge how you’re reacting to this situation. If you’re not cuddly, then don’t do anything that doesn’t feel natural
  • Know that you can’t control others actions–some people may rush to your side, others hang back. Let everyone “be” without worrying about them. Stay focused on you and your loved one

I’m Already Wracked With Guilt and Regret–We Should Have Caught This Sooner, I Should Have Done More…

These are normal feelings. It gives our brains something to do. We’re under the illusion that we control things, that if we had done this, not done that, that things would be different. Life is bigger than us mere mortals. Try not to stay in this awful, negative vortex.

You’re spinning your wheels and taking valuable time and thought –and love away from your your loved one and the time you have together. Stay Present.

I Can’t Think Straight–Shouldn’t I Be Making Plans?

Only if that brings you a measure of comfort. It will all work out. Let your liaison coordinate anything you’d like done now–flights, checking out care facilities, etc. This isn’t the time to get caught up in the doing–and if you are, do it because it’s your coping mechanism, not because you think you should.

When Do I Start Making Funeral Arrangements?

It’s different for everyone. Some people have family plots and know their local funeral director as a friend. Others are new to their area and haven’t a clue.

Are you the type to ask a doctor flat out how long does your loved one have left?

Do you want to know?

It’s okay not to, everyone’s copes differently. Also know that doctors are not infallible. They can be wrong. They can misjudge. Life is determined by the will–and the spirit. But if it would make you feel better to have a general time frame, then ask a doctor or nurse–ask if it’s time for hospice–enlist all the care you can get.

Hospice will be more wiling to talk about the death and dying process than doctors will (usually) -and palliative care (pain management). Some doctors resist hospice, but I find they’re a valuable resource to families. It doesn’t mean your loved one is going to die this second because you ask for hospice. It means you’ll have the support you need–people that have been through this.

Should My Loved One Stay in the Hospital, Go Into a Hospice Center or Should I Take Them Home?

Again, what’s right for you? And your loved one? Have you talked about this before? Have you ever thought about it? Is there care manageable at home? Will that be more stress on you–or less?

It may take you a while to figure out what feels right, and sometimes you figure out what’s right by what’s wrong–if the hospital is getting on your nerves and you just one everyone to go away and for it to be a time of peace, then you probably want a hospice center or to return home.

Does the care feel overwhelming to you? Would you rather go to a care center and let others take care of things? You can spend the night there, and most hospice centers are very thoughtful and serene.

Or does home sound like the only place you and your loved one wants to be. Home hospice is available as well, and pain can be managed from home.

You’ll figure this out along the way. Don’t feel pressured to make decisions prematurely or on someone else’s timeframe. Trust your gut.

For some, this is a deeply spiritual time, a time when faith is important. Even if you haven’t turned to your faith in years, if it feels right, then ask to see a chaplain, priest, or rabbi. Faith can oftentimes give you a measure of comfort and hope.

I’m Scared if I Stop Moving, I’ll Fall Apart

Is it so bad to fall apart? I know you think that if you do, you’ll never function again. You will.

If you truly can’t let yourself fall apart now, then set a date–in the future–and give yourself permission to fall apart then. Eventually, you’ll need to cry and scream, and beat something. You’ll need to curse, or sob, or fall to the ground. This is all a part of grief, and grief starts long before the last breath.

Losing a loved one is about the hardest thing you’ll ever do and the emotions that come with it are some of the hardest, strongest, saddest, awful-est time you’ll ever go through. But you will.

You will keep breathing. Your heart will keep beating, unfair as it is. You will.

But for today, be present.

If you have only days, weeks, or months left, then gather and treasure every sweet moment you have–

Carol D. O’Dell

Author of Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir

available on Amazon

www.mothering-mother.com

Family Advisor at www.Caring.com

Syndicated Blog at www.OpentoHope.com

Kunati Publishers, www.kunati.com/mothering-mother-memoir-by-car/ – 95k

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