Now, where was I?
Do those words sound familiar?
1. Do you walk in a room and can’t for the life of you remember why you’re there?
2. Have you walked into a grocery store and just didn’t have the energy to shop–and just left?
3. Have you sat a red light and not realized it turned green?
4. Have you forgotten appointments again and again?
5. Do you find yourself zoning out when family and friends are around? Have you wondered if you said good-bye when talking on the phone because you were talking on the phone–and now you’re not–and you’re not quite sure what happened?
That’s caregiver stress for ya. Not ony our loved ones with dementia and Alzheimer’s face memory issues. It’s not that we all don’t do those things, but for a caregiver, it could be a daily occurrence.
Sure, we all do that, and mid-life or menopause gets blamed, but it’s also a major sign of stress–the bad kind, the kind that’s not good for your heart–and could be dangerous. Sandwich generation-ers have so, so many things to remember–so many people to take care of. I know, I can’t tell you how many times I stood in front of the open frig door and couldn’t remember what I was there for.
So, what do you do? Quit caregiving? Not an option?
1. You have to, have to get sleep. Keep a sleep diary–if you’re regularly getting under six hours sleep, you have to begin to think about solutions to this problem. Sleep deprivation can no only affect your day-time activities, but is a contributing factor to heart disease and car accidents.
According to the National Family Caregivers Association (www.nfcacares.org/ )
Elderly spousal caregivers with a history of chronic illness themselves who are experiencing caregiving related stress have a 63% higher mortality ratethan their non-caregiving peers.
Source: Schulz, R. and Beach, S. R., Caregiving as a Risk Factor for Mortality: The Caregiver Health Effects Study. Journal of the American Medical Association, Vol. 282, No. 23, December 15, 1999.
Stress of family caregiving for persons with dementia has been shown to impact a person’s immune system for up to three yearsafter their caregiving ends thus increasing their chances of developing a chronic illness themselves.
Source: Drs. Janice-Kiecolt Glaser and Ronald Glaser, “Chronic stress and age-related increases in the proinflammatory cytokine IL-6.” Proceedings of the National Academy of Sciences, June 30, 2003.
Family caregivers who provide care 36 or more hours weekly are more likely than non-caregivers to experience symptoms of depression or anxiety. For spouses the rate is six times higher; for those caring for a parent the rate is twice as high.
Source: Cannuscio, C.C., C. Jones, I. Kawachi, G.A. Colditz, L. Berkman and E. Rimm, Reverberation of family illness: A longitudinal assessment of informal caregiver and mental health status in the nurses’ health study. American Journal of Public Health 92:305-1311, 2002.
So, are there some real solutions for real caregivers?
It’s not easy, and I’m not trying to placate you. You’re probably going to have to do some trial and error, but consider these options:
Make your room peaceful–take out the clutter. Cover the windows so light won’t wake you. Cover your alarm clock–you’d be surprised how that glowing light can bother you! Make sure you have all the “creature comforts” you need–a comfy pillow and cover, less stuff lying around, a bowl of lavendar or camphor that seduce your body into sleep, and nonrestrive pajamas. Create bedtime rituals–brush your teeth, change into your jammies, put on some lotion, lay out your clothes for tomrrow, get snug in your bed–make it a pleasure to get ready for bed. If you have nighttime potty issues, avoid drinking anything two hours before you go to sleep. Eat dinner early so your tummy isn’t still working far into the night. Say your prayers–or some form of meditation that includes gratitude. Going to sleep with a happy heart makes you sleep better. Avoid replaying the day in your head. Pick a visual–a rose, a lake, a meadow–and focus on that visual–push worries and regrets out of your mind. Make sure your room is not too hot–most people sleep better with cool air not stuffy air. Do ”toes to head” relaxation method–tense each muscle for 5-6 seconds, and then release it. Do this all the way up the body. If you don’t have to wake up to an alarm clock, then don’t. Waking naturally is best. Get your loved one on a schedule you can live with–offer breakfast and pills at a time that is reasonable for you–it may take awhile, but slowly get them on your schedule–not you on theirs. In the morning, take care of your needs first. Have your coffee, your morning gratitude prayer, and a good stretch (and for me, journal time) before you start your giant “to do” list. Get a calendar and give yourself a star for each good night’s sleep. When you don’t sleep well, ponder the culprits–did you watch TV too late? Eat ice cream at 10:00? Forget to cover up the clock? Is something bothering you? Figure out what it is, and try to fix it!Now this doesn’t address your loved one who doesn’t seem to need sleep, and doesn’t think you need it either!
Next blog….I promise.
Author of Mothering-Mother: A Daughter’s Humorous and Heartbreaking Memoir
available on Amazon and in most bookstores.
[...] Original post by caroldodell [...]
[...] Here’s another interesting post I read today by caroldodell [...]
[...] is a lot more serious. Carol O’Dell lays it out in plain English in a blog post entitled 5 Signs of Dangerous Caregiver Stress and Sleep Deprivation. This is the sort of thing that really gets my attention because I’ve experienced [...]
Absolutely excellent article! I do most of those things that were recommended although I still get 6 hours or less quite often. I try to get to bed & be asleep early which seems to mean a get a little longer without interruption. For some strange reason I’ve never been one of those people who can just relax and have a nap during the day. I’ll lay there, but I never seem to doze off. It’s like my brain believes it has to be alert as long as there’s daylight.
[...] Carol O’Dell lays out some real solutions in her post 5 Signs of Dangerous Caregiver Stress and Sleep Deprivation. [...]
Caregiving can be a very stressful time of your life. Add in the effects of sleep deprivation, and its a dangerous combination for everyone involved. And as the population ages, this problem will only increase. This is a great list of suggestions to offer help and guidance to anyone facing these issues.
This is so true! One other thing that needs to be addressed:
The absolute *necessity* for respite care. Every day, if need be, so that the primary caregiver can recharge.
If you are up with a person who wanders and/or has a bad night, it may not be an issue of you not being able to fall asleep, but being able to sleep without having interruptions to that sleep (restless person who wanders, ill person in pain who is crying all night, meds that need to be administered at night, etc.).
There needs to be more social (family, friends, religious institution, etc.) support for caregivers. Too many times, it is only lip service, not a real offer to help, that most caregivers receive.
From my experience, it is not always pride that prevents caregivers from asking for help. It is also the sad knowledge that many people are not really interested in getting their hands dirty by actually *doing* something, so they say ‘call if you need anything’, to the caregiver, but don’t really mean it.
After you have called on people who offered to help ‘if you need it’ a few times, only to be rebuffed, you stop asking, and just do what you can, whether you really are capable or not.
PS: I found your blog over on Caregiving Blog
I have been a caregiver for my mother and brother for over 5 years. I can’t say that I don’t feel stress at times and, for sure, I have exhibited some of the characteristics you listed above. Mom has dementia and she has always been there for me. My brother has Down’s and lived most of his life in a residential treatment center. So as an adult we didn’t have any regular contact except when I returned home from where ever I lived at the time (sometimes over 4000 miles)
But my situation seems to have allowed for the release of much of the pent up steam. Now that I am his caregiver too, we are rediscovering a long lost relationship and he is now my best friend. Even though we can’t have an intelligent conversation, we sure can play together and we do. When I’m not teasing him he’s teasing me and so we laugh our way into the night only to start again the next day.
I am grateful to have this role of caregiver, knowing that mom cleaned more bottoms than I have to. I am grateful for getting to know just how fun and loving my brother is. The stress, I can take it.
[...] Take it down to your level. Maybe you’re dreaming of a vacation. Take out that seashell you picked up a few years ago and put it on your kitchen counter–just as reminder–and a way to lay claim to your own future. Check out a book from the library about where you’d like to go, or visit an online forum where other travelers have been there and suggest places to go and see. Daydreaming is great way to get your mind off the daily caregiving stress. [...]
[...] and your own life is at risk. . Know the signs and break the cycle. See Carol O’Dell’s Caregiver [...]